• DEBRA NZ team.

    Left to right, Sharon Cassidy - EB Nurse, Neville Carson – Chair of Trustees,  Jillyan Hing – Founder and Trustee, The Rt Hon. Sir Annand Satyanand – past patron, Lady Susan Satyanand, Jacqui Finnigan – EB Nurse, Anna Kemble Welch – Director of DEBRA NZ


His Excellency Lieutenant General The Right Honourable Sir Jerry Mataparae, GNZM, QSO, Governor-General of New Zealand and Her Excellency Lady Janine Mateparae.

Chair of Trustees

Neville W.M. Carson  – Barrister and Theatre Administrator, Wellington      


  • Jillyan Hing – Business woman, Hastings.
  • Professor Ingrid Winship – Professor of Adult Clinical Genetics, University of Melbourne, Australia.


  • Anna visiting an EB family in Talca, Chile with their new container home.

    Anna visiting an EB family in Talca, Chile, with their new container home

Anna Kemble Welch

Anna has been the part time Director of DEBRA NZ since 2001, planning annual conferences, camps and events, organizing and fundraising for the DEBRA Nursing Service and other DEBRA projects.

She is also the past President of DEBRA International, a network organisation for DEBRA groups in over 40 countries.

Anna is a registered Architect with her own practice, Red Design: Architects. Red Design specialises in houses, bachs, projects for the elderly and people with mobility issues, and urban design schemes. These all have a high design content and an environmentally-friendly twist.

Projects Officer

Martin Hanley

Martin has been the voluntary DEBRA NZ projects officer since 1985.

Martin is a part time Lecturer in Architecture at Victoria University, Wellington, and the Disability Support Officer for the Te Aro Campus. He is also a partner in Red Design.

Anna and Martin live in Wellington and their son Humphrey has Recessive Dystrophic EB. For many years they have been tirelessly raising public awareness of EB and helping DEBRA New Zealand develop into a very effective organisation.

Honorary Solicitor

Helen Bowie – Partner, Chapman Tripp, Wellington

DEBRA NZ Volunteers

A team of DEBRA NZ volunteers get involved at different times to help with projects including conferences, camps, newsletters and publicity.

See also


+64 (0)4 389 7316   Contact an EB nurse

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