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2017 INTERNATIONAL CONGRESS

WELLINGTON - NOVEMBER 24-26

DAY 3: SATURDAY, 26 NOVEMBER 2017

Improving care and treatment for people with EB around the world

Home Care Program Improves the Life Quality of Patients with Epidermolysis Bullosa: a Taiwanese Perspective

Claudia Yun-Tzu Chang, Taipei First Girls High School; DEBRA Taiwan & Dr Hao-Hueng Chang, National Taiwan University Hospital; DEBRA Taiwan

Presentation

Challenges in diagnosis and management of Epidermolysis Bullosa in developing countries

Dr Kin Fon Leong, Dermatologist, Kuala Lumpur, Malaysia

No notes

The role of EB Clinet, and potential for developing an international EB Medical Advisory team

Dr Anja Diem, EB House Austria

Presentation

EB Without Borders, panel discussion

Lea Prujean, Ritu Jain, Vlasta Zmazek, Loreto Moore, Ingrid Jageneau, Anna Kemble Welch, Zlatko Kopecki, Sharon Cassidy

No notes

Developing care guidelines for low resource situations, panel discussion

Dr Anja Diem, Dr Francis Palisson, Sharon Cassidy, Yingchun Zhou, Lea Prujean, Sumita Poopalalingam, Anna Kemble Welch

No notes

The experiences of DEBRAs in different countries - what we do best and what we still need to develop

DEBRA China

Mr Yingchun Zhou, President of DEBRA China

Presentation

DEBRA Croatia

Mrs Vlasta Zmazek, President of DEBRA Croatia, President of the Croatian Alliance for Rare Diseases, and member of EURORDIS Board of Directors

Presentation

DEBRA UK

Ben Merrett, CEO DEBRA UK

Presentation

DEBRA Australia: Sustainable Growth - Balancing Ideas and Funds

Jenny Marty, Chair of DEBRA Australia

No notes

DEBRA Chile - DEBRA Shop Project

Loreto Moore, Director, DEBRA Chile

No notes

DEBRA Russia - international collaborative fundraising projects: "The Untouchables"

Tatyana Volgunova, Project Manager, DEBRA Russia

No notes

The Global Butterfly Run 2017: Russia, Chile and Singapore

Oxana Romanchuk, (DEBRA Russia), Carmen Justiniano (DEBRA Chile), Ritu Jain (DEBRA Singapore)

No notes

DEBRA New Zealand - Tribulations and innovations

Martin Hanley

No notes
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